Genetic Conditions CHARGE Syndrome – SENSE UK shares information around CHARGE syndrome. CHARGE is a complicated genetic condition which can effect the eyes causing coloboma. CHARGE syndrome | Sense Rett UK – A charity that provides professional support to people living with Rett Syndrome. https://www.rettuk.org Swan UK – Supports families who are affected by genetic conditions without a name due to the rarity of the condition. They are a network for families so that they can receive the support they need. They also run events for families where they can have fun as a whole family. They are also a champion for the rights and sharing of information with professionals around the undiagnosed community. Home | SWAN UK (undiagnosed.org.uk) See more of our A-Z Guide