CHARGE Syndrome – SENSE UK shares information around CHARGE syndrome. CHARGE is a complicated genetic condition which can effect the eyes causing coloboma. CHARGE syndrome | Sense

Rett UK – A charity that provides professional support to people living with Rett Syndrome.

Swan UK – Supports families who are affected by genetic conditions without a name due to the rarity of the condition. They are a network for families so that they can receive the support they need. They also run events for families where they can have fun as a whole family. They are also a champion for the rights and sharing of information with professionals around the undiagnosed community. Home | SWAN UK (

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